Judge rules Charlie Gard can't die at home

Parents of baby with rare disease inspired by Charlie Guard fight to get more treatment

Parents of baby with rare disease inspired by Charlie Guard fight to get more treatment

Chris Gard and Connie Yates had fought for months against a London hospital's recommendation that the child be taken off the life support he needs to stay alive with a rare mitochondrial condition.

Meanwhile, Katie Gollop QC, who is acting for Great Ormond Street hospital, said the hospital had searched "the length and breadth of the country" for an appropriate medical team who could care for Charlie.

Mr Justice Francis gave the parents and GOSH until noon today to reach agreement. Every day, parents with a seriously ill child in intensive care units, emergency rooms and other pediatric care facilities make heart-rending decisions to withdraw life-sustaining technology.

The latest legal row began when the hospital said it was not practical to get the equipment the child needs into the family home, as his ventilator is unable to fit through the front door. Nurses from the hospital nonetheless have volunteered to care for him in his final hours.

CNN reports that an attorney for Charlie's parents said they objected to the "brutality" of moving Charlie to hospice, only to have him die shortly after.

Charlie suffers from mitochondrial depletion syndrome, a rare genetic disease, and can not breathe unassisted.

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"It is in Charlie's best interests to be moved to a hospice and for him at that point to be moved to a palliative care regime only".

Doctors at Great Ormond Street said the therapy would not help and that life-support treatment should stop.

Charlie's parents abandoned their fight to allow him to be flown to the USA for experimental treatment on Monday, having determined it was no longer viable because of muscular atrophy he had suffered while the case went through the courts.

He said the "window of opportunity has been lost" to help Charlie, according to Sky News.

On Monday the couple abandoned their months-long battle to take Charlie to the United States for experimental treatment. On July 17, Charlie was examined by US neurologist who claimed that an experimental therapy could provide up to a 10 percent chance of improvement in the child's condition.

US -based anti-abortion activists flew to London to support Charlie's parents, and the case became a flashpoint for opposing views on health care funding, medical intervention, the role of the state and the rights of the child. "We can not know if Charlie would have responded to the experimental therapy". This came after unpublished research suggested there was a chance for some reversal in Charlie's brain damage.

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